Contents

1. Acknowledgements
2. Introduction
   1. About Bettercare
   2. Why decentralised learning?
   3. Free Bettercare Online Learning Platform
   4. Learning programmes
   5. Format of the courses
   6. Contributors
   7. Updating the course material
   8. Contact information
   9. Registration
3. 1 Introduction to perinatal palliative care
   1. Contents
   2. Objectives
   3. Understanding perinatal palliative care
   4. The importance of perinatal palliative care
   5. When to provide perinatal palliative care
   6. The continuum of perinatal palliative care
   7. Different points at which perinatal palliative care can be provided
   8. Providing palliative care alongside other treatments
   9. Case studies
4. 2 Providing palliative care in the antenatal period
   1. Contents
   2. Objectives
   3. Providing care during the antenatal period
   4. Management if the decision for a termination is made
   5. Management if the decision to continue with the pregnancy is made
   6. Holistic perinatal palliative care planning
   7. Management if there is an unexpected early death of the fetus
   8. Case studies
5. 3 Care and support during labour and immediately after delivery
   1. Contents
   2. Objectives
   3. Decision making before delivery
   4. Management during labour
   5. Management of the baby and mother after delivery
   6. Case studies
6. 4 Care and support during the neonatal period
   1. Contents
   2. Objectives
   3. The role of palliative care
   4. Setting goals of care
   5. Care of the baby
   6. Managing pain and distressing symptoms
   7. Supporting the mother and other family members
   8. Place of care
   9. End-of-life care
   10. Supporting the family at end-of-life
   11. Care after the death of the baby
   12. Case studies
7. 5 Key considerations in perinatal palliative care
   1. Contents
   2. Objectives
   3. Care and support of the family after the death of the baby
   4. Post-partum care and discharge
   5. Other circumstances needing consideration
   6. The role of genetic counselling
   7. Care of self
   8. Case studies
8. Appendix A: Perinatal palliative care birth plan checklist